Tomorrow at 11:15am Kyleigh will have another eye surgery at Duke Eye Center. She regrew the cataract on her left eye so she must have it removed to allow for sight in this eye to not be hindered further. The surgery itself isn't that difficult but it is the preparation before, the recovery after, and the cloud of possible problems looming over head that causes me anxiety. Kyleigh can not have food after midnight and considering she isn't a big fan of dinner time, the last meal she had was at school today. She can have a sippy cup of milk in the morning if we wake her up at 4:45am and she drinks it by 5am. Then she can only have water or apple juice until 9:15. Our arrival time is not the surgery time so we are not really sure how long it will be before she is actually taken back for the surgery but she is definitely going to be hungry by that point. After surgery, she is usually pretty fussy from waking up out of the anesthesia. Luckily we don't have to spend the night, instead we can come home once she is awake and has drank something substantial. The ride home can be just as difficult if she is no longer drowsy from being put under, her eye hurts, the bandage bothers her, or any number of things. The other part is the risk of surgery on her left eye is glaucoma setting in this eye too. So far she only has glaucoma troubles with her right eye which was the cause of eye surgery last year to place the implant drainage tube (shunt). It would be great to have this surgery go smoothly and the outcome be that her vision is restored and no problems come after the fact.
Other updates...
Kyleigh is talking up a storm lately. Today at school her teachers reported that she finally used a sentence to say, "help me please", when she couldn't get her pear on to her fork. Oh my goodness, that made me so proud that I almost cried. We are working so hard on her using her words to ask for help instead of crying and this is a major step. She also said her teachers names today, "jessie" and "k k" for Kimberly. So proud!
Kaitlyn is doing well in school. She got her report card and it shows that she is improving in her reading. Although she is still behind, most likely related to vision, she is receiving lots of support and high fives from her teachers, therapists and us at home. She is taking more steps to write on her own and have fun with writing. She is becoming more and more confident in her own self. We are are so proud of her too!
Stay tuned...more updates to come soon.
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