Kyleigh's Eye Pressure is Up

We went today to Duke for a recheck of her eye pressure in the right eye. It is extremely high -- 30! The doctor is very concerned and added another eyedrop for her to take only in the morning. She added Timilol which is another eyedrop that Kaitlyn is also on but Dr. Freedman is cautious with using this one on Kyleigh because she is so small and it has side effects that could present in the form of respiratory difficulty. Therefore, she will only get this drop one time in the morning and it will be wiped away immediately. We will return in 2 weeks for another check on the pressure. If it is no significantly better then the next option is surgery. In fact, she is scheduling a pre-op for the next appointment in the event that the pressure is still up she can go ahead with surgical plans. If we notice her eye looking like it is becoming more cloudy then we are to call immediately for a recheck. My thoughts are that this little girl is just going to keep me going to my knees in prayer. Please help us pray that the pressure will go down using the drops and without any side effects.

She was also seen by the pediatrician office today for her RSV vaccine and we discussed her reflux. The pediatric nutritionist that came out to the house yesterday had called to confer with the pediatrician regarding her reflux and eating. The pediatrician we saw today was Dr. Burbridge (her regular doc is on vacation). He is the doctor that originally put her on Zantac. He agreed that by our description her reflux is in need of more aggressive treatment. He has increased her Prilosec dosage, faxing the medical report to Duke GI in hopes to move the appointment up sooner than May 28th, and told me that if there isn't a drastic improvement soon we should consider taking her off breastmilk and putting her completely on a special formula. I hope we can avoid this considering I have a deep freezer full of milk but we shall see and do what is best for her tummy.

That's all of the update for now.