Over 6 weeks post surgery from implanting a shunt on the right eye and the shunt has opened and the pressure is down from the 40's to a 2. Good news-right? Well, it is actually too low but no worries says Dr. Freedman as she adjusts her medication and takes her off glaucoma (pressure) drops and keeps her on a steroid but increases the frequency of steroid drops. This is an attempt to bring the pressure to a stable number between 10-14. In the meantime, Kyleigh's eye has starting changing from white (as the left eye) to mild yellow to now a dark yellow. This has caused anxiety not knowing if we should move up her recheck appointment from June 7th to immediately. Thank goodness Dennis' camera worked and was able to capture this picture and a few others. We were able to send them to the doctor and she replied the following:"What you are seeing is the "going away" of the blood which had accumulated in the space under the transparents surface (conjunctival) tissue of the eye. I suspect there was a hemorrhage there from my antibiotic injection at the end of the surgery, and it can take a very long time to go away, turning all shades of green and yellow as the hemaglobin from the blood is metabolized. Is that conceivable? Did there used to be a bloody spot down there? If it is most yellow at the bottom, but looks otherwise okay (and not so small anymore?) then I am not overly concerned and feel we can wait at least until I return to town."
Phew! We breathe a deep sigh of relief knowing we aren't facing a emergency trip to Duke and that our biggest battle is feeding right now as she is asserting her toddlerness at the table and having sensory overload as her therapist called it today. Thank goodness the therapist was able to come see her today as I have reached my breaking point and was willing to do just bottles until she turned 16--not really but you get my point. Deanna was great and she made me feel less "stupid" and reassured me that it wasn't my fault. I love Kyleigh's therapists because they love her and they truly help her and me through this journey.
1 comment:
Crystal, I really appreciate your honesty and openness! You guys have been through so much and you have handled it with such grace. I am not really the type of person that comments on peoples blogs, and this is the first time I have even been on yours. I just felt led to let you know your light shines more than you probably know!
-Jason Brinkley
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