Little Delayed Update

We had an amazing family vacation to Carolina Beach July 31st-Aug4th. We stayed in our friend Heather's family place and it was perfect. We spent time on the boardwalk, beach, pool, arcade, and just enjoying each other's company. We visited the NC Aquarium and also took the opportunity to ride a "family" bike with the girls. It was so fun. We have pics and I can post them soon.

This past Tuesday Kyleigh went in for her blood work to confirm or deny the possibility of Stickler Syndrome. I was so nervous about the whole thing because everytime she has had an IV or blood drawn or shots I have cried along side of her. But this time was surreal. She sat on my lap, looked at the nurse, looked at her arm, I sang songs, and she just sat while they drew the blood. NOT A SINGLE TEAR! She even kept the bandage on afterwards and was curious but not enough to pull it off. The lab tech was pleasantly surprised and I was thrilled. I cried afterwards just as a release of all the built up emotions but was so very proud of my amazingly brave little girl. We should find out something in approximately 6 weeks. The test was sent off to Tulane University in Louisiana, the only lab that is equipped to complete the test on the specific DNA chromosomes.

School is right around the corner for us. Dennis and I have had workshops this week in preparation for the new year. Kaitlyn has gone back to school shopping already and was excited about her new items of school supplies and clothes. However, she still has that anxiety of transition that I am sure will disappear once she is in the classroom and making friends. Kyleigh will continue at Gateway Education Center this year in one of the rooms that is led by a classroom teacher. We also opted to continue the extra occupational therapy at home during the school year in efforts to move her off of baby food.

Until next time, we are going to enjoy the last few days of summer at the pool and with friends and family and will post pics soon.