Tuesday, April 14, 2009

Update on Kyleigh

Kyleigh had her 4 month check up yesterday on my 31st birthday. Poor baby had to get her booster vaccinations but she did a great job. She is currently still below on the growth charts and now considered "failure to thrive" baby. Her current measurements are: 

Weight 8 lbs 15 oz 
Length 22 1/4 inches long

These measurements fluctuate because they weigh her with clothes sometimes and other times without clothes. Regardless, Dr. O'Kelley said we should "soup" up her formula and make it rocket fuel. He had our nutritionists call me today with the specifics of how to mix the formula to give her more calories per serving. We are also trying rice cereal. 

Meanwhile, we have called the GI doctor at Duke to get a consultation regarding her reflux medicines as this has become quite a problem with feeding and weight. She has a double ear infection that was found at the appointment yesterday and most likely due to reflux. So we are currently awaiting instructions on how the meds will change to address her reflux. 

On a good note we saw Dr. Freedman today and she loved how Kyleigh's eye looked and how responsive she was to lights and toys. She seemed to be the most visually responsive and active today than ever before. Dr. Freedman was very pleased with this behavior. Kyleigh at one point reached for a toy that Dr. Freedman had in her hand. She also brought her hands together at the midline which is a very necessary and developmentally appropriate task that she hasn't been doing consistently. We were so ecstatic to get good news about her visual tracking and sight. We will return in three weeks for another check but her pressure is at a good number and things are looking on the up and up. She has been referred to Governor Morehead for visual therapy and we hope to hear from them soon. 

We are also in the process of seeking financial help with her formula, meds and doctor bills as these are piling up. Her formula alone is costing us approximately $600 per month and that is way over our budget. We went from mommy's milk to $50 a can in less than 1 month--talk about painful. We are in constant prayer about a decision for me to work next year or take time off to help Kyleigh overcome some of her medical hurdles. However, with so many expenses it seems unlikely that we can make it without my paycheck. So please join help us continue to pray for Kyleigh's development, health and our financial situation as we look to God to help us make the best decision for our entire family. 

3 comments:

KIM said...

I am so happy for the good news that you guys really needed! And I will continue to pray for Kyleigh's development and health. As well as for you guys financially and in your big decision making. Children are expensive, but I can't imagine the finalcial burden with all the medical costs that normally aren't attributed to having a child. I know you guys will make the right and best decision you can.

Many hugs,
KIM

Sissy said...

You are in our prayers. I am glad Kyleigh's eye is doing better.

Jennifer Stone said...

Will definitely be praying!

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