Kyleigh Update

This week Kyleigh went to see the ENT at Duke, Dr. Kaylie. He decided it was the best interest to have tubes inserted since Kyleigh continues to struggle with recurrent ear infections. The surgery is scheduled for July 22nd. We went today for the pre-op appoinment. We also saw Dr. Ulshen, her GI doctor, today in regards to her reflux. He agreed that her reflux is severe but is glad to see that according to her records at Duke she is gaining weight. She is well below the growth curve chart in weight;however, she is continuing to climb on her own curve and following her own growth path. This is encouraging. He said to watch for signs of dehydration if she has too many episodes of refusing to eat but that hopefully this will pass as she has had some good days for feeding recently. He increased her Baclofen meds to assist in calming the reflux. We began the gradual increase of the meds today. It was a long day on the road to and from Duke but she was a trooper. The exhausting day caught up with her and the crankiness set in this evening. But after a nice bath and pj's she settled in and finally fell into a good sleep. I'm praying this increase of medicine will not have any adverse side effects such as "floppiness" as the doctor described or "excessive sleepiness/drowsiness", rather I hope and pray that it will decrease her reflux episodes to zero or close enough that she can go through a day pain free with eating.