Home Sweet Home

  We brought Kyleigh home today after her post-op and appointment with the optical shop and speech. The night at the hospital went smoother than last week. Dennis spent the night too despite the regulations of only one parent. We just shared the pull-out couch bed and alternated getting up with Kyleigh. The monitors didn't go off nearly as much and the nurses left us alone for the most part. We had a friend Julie visit last night, it was great to see her and she met Kyleigh for the first time in person. 

   We are trying a new bottle system with her feeding. She was having heart rate drops and desat O2 levels on the Haberman so they are trying her on the pigeon bottle. With this bottle the valve is interchangeable with standard store bought nipples. So we are going to experiment with finding the right flow for her. Her post-op gave good news. Both eyes are doing well. The right eye is still hazy from last week's surgery but mostly because it is the smallest eye and the cornea is still recovering. This could still clear up. Her pressures are normal, retinas and optic nerves look great. She was fitted for her first pair of glasses today. She is on several eye drops, amoxycillin for the ear infection and tylenol for pain, in addition to the acid reflux meds. She has her on little drug store right now. 

   Kaitlyn is still sick with the stomach bug (poor thing). She is still at grandparents to keep from having her spread it to Kyleigh. We miss her terribly but hope she gets through this fast so she can return home to us. 

   Kyleigh has a doctor appointment in the morning for her RSV vaccine and then we go back to Duke on Monday for an eye check up, feeding consult and an ENT evaluation.